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In Pennsylvania the Office of Medical Assistance
[Medicaid] has developed the use of managed care organizations in
an attempt to save money. This article explores suggestions as to
how to bring a very fragmented system of child services together
in creative ways to enable children with problems in living to improve
social performance. Behavioral health is the current metaphor for
'mental illness' a metaphor for problems in living which make the
person appear to be bizarre.
INTRODUCTION
The initiative of the Department of Public Welfare to deliver what
is referred to as 'behavioral health rehabilitation services' to
medical assistance recipients through a managed care process separate
from physical health care processes is not dramatically different
from the original decision to create community mental health services
in 1966. In both cases, the operational entity was given a set amount
of money to care for a set number of people [all within the 'catchment
area' geographic boundaries who needed service]. The process is
essentially one of 'capitation', or paying a premium for expected
services and the risk to the operating entity is whether they can
provide the services to all of the people who need the services
within the limits of the resources.
This capitation process places the county/MCO at both financial
and health risk, for if required services cost more than the available
funds, the county/MCO must cover the costs OR risk not fulfilling
the service delivery responsibilities. The variables of this risk
are:a) the resources [finances available]; b) the population size
[universe]; c) the population context [the number of people in the
population who will need to receive services - e.g., the percentage
who are in need of help]; d) the cost of providing services; and
finally e) the effectiveness of the services.
The present projections about the need for behavioral services
are rather dramatic. However, two factors seem to cause these high
predictions. First, is the self-serving process of behavioral health
experts attempting to ensure future financial resources. Catastrophic
predictions are much better at ensuring that society will allocate
funds than modest predictions. Second, is the discrimination of
what is a 'behavioral health' issue which requires professional
services. Just as our society is prone to go to the family doctor
for a common cold despite the fact that there is no medical attention
which can affect the progress of the cold; so too, does our society
tend to take normal reactions to trauma or loss as requiring 'clinical
treatment'. Thus, the attitude of the community towards the need
for 'behavioral health' services is an artifact of how the public
agencies respond to issues and concerns of the public. If the public
office decides that any person receiving a speeding ticket in the
county is in need of clinical treatment, we obviously foster increased
potential need. Thus a fundamental assumption about atypical behavior
and a theory of change are required to set the standard regarding
the nature of the population to be served.
The actual percentage of people who need professional services
to overcome problems in living may be very different from the number
of people who are identified as being in need. The decisions about
how to identify and respond to social issues is a critical part
of the determination of percentage of people who will need services.
If, for example, we simply require 'speeders' to attend a driving
class, rather than have 'clinical treatment', we have addressed
the issue without committing the 'behavioral health' resources.
It is important to note that the local government, is heavily involved
in this tradeoff. The county can spend its funds through education
or clinical categories, but it is still county money. The competition
between the people providing these resources is artificial and wasteful.
Perhaps an even more important trade off is the option between
custodial care and prevention. If the public policy is to provide
custodial care without prevention services, one can assume there
will always be the need for custodial care. This is both a philosophical
and a theoretical problem. From a philosophic standpoint, the need
for prevention may be obvious. But if one believes in certain theoretical
positions concerning biology, prevention is useless. One cannot
prevent an epidemic of chemical imbalance. This is an 'act of God'
or at the very least an 'evolutionary glitch', and beyond the scope
of mere mortals. In this situation, we can only respond to the presenting
problems and a crisis mode will always be predominant.
The cost of providing 'behavioral health' services is difficult
to assess for two reasons: first, 'behavioral health' professionals
have never developed the same protocols as physical medicine, therefore
treatments may be necessary for one week, one month, one year or
one lifetime. The second, is that the nature or response varies
from the very expensive 'medical' to the relatively inexpensive
'cognitive behavioral', and there is no public stance on the appropriateness
of either. In fact, 'behavioral health' professionals, just to be
safe, tend to recommend both approaches.
One of the clear problems that the present MCOs are having is the
increased cost of doing business that medical model approaches entail.
Managed care has effectively moved public 'behavioral health' services
back twenty years to a full medical model, ignoring the learning
of the traditional public system. One needs to remember that private
health care staff and organizations such as MCOs have no history
of working with people with severe and persistent problems in living.
Historically, unless the person was independently wealthy, insurance
coverage ran out quickly and the person quickly came under the auspices
of the public system. The Commonwealth of Pennsylvania had finally
arrived at an understanding that people with 'chronic' problems
were much better served in home, school/work and community [although
the child services hardly got off the ground since, until the advent
of Early & Periodic Screening, Diagnosis & Treatment (EPSDT)
in the early nineties, there were virtually no services].
The National Institute of Mental Health [NIMH] formally supported
'community based programs' [psychosocial programs of residential,
vocational and social intent] as early as the 1970s. In fact, NIMH
created the CASSP [Children & Adolescent Service System Programs]
to emulate the adult programs in the early 1980s, although true
funding for children's programs did not come until the 1990s with
the Scott court settlement. [And then were funded through a medical
category of Medicaid] Much of this gain has been lost to the resurgence
of the 'medical model' and the idea that through medication and
incarceration, we can 'cure' the chemical problems, despite the
fact that there is no evidence to support this notion and that the
costs are much higher if for no other reason than the maintenance
of the psychiatric necessity. As an aside, where is the world would
psychiatrist work if there were no public mental health with guild
regulations providing not only jobs, but status as well? Not since
the 'feather bedding' of the railroad days have people with no skills
been paid to do nothing.
The effectiveness of the service delivery system has a direct correlation
to the potential risks. Low cost ineffective services are costly
since the problem never goes away. High cost ineffective services
are even worse. High cost effective services - those that make the
problem go away after some specific period of time, may hold short
term risk, but have high long term potential. The ideal is of course,
low cost effective services. There is significant evidence to suggest
that the high cost long term benefit is not valued by the contracted
MCOs because of the uncertainty that they will benefit from this
option given their contractual status.
Medical services are by nature high costs. Restrictive services
are high cost. Cognitive behavioral approaches are low cost [particularly
if their implementation processes are expanded to include both educators
and lay people]. Home, school/work and community costs are lower
than residential or 'factory' models. The philosophy of communities
that take responsibility for their own and cognitive behavioral
responses and prevention is clearly the optimal focus. On the other
hand there is no indication that medical interventions have any
value whatsoever in regard to positive outcomes. While certain medications
can be said to eliminate behaviors, they ignore the fundamental
problems and therefore only 'mask' the issues at hand.
An underlying problem generates symptoms that demand attention.
But the underlying problem is difficult for people to address, either
because it is obscure or costly to confront. So people"shift
the burden" of their problem to other solutions - well-intentioned,
easy fixes which seem extremely efficient. Unfortunately, the easier
"solutions" only ameliorate the symptoms; they leave the
underlying problems unaltered. [Senge - 1990]
Even if such interventions were low cost they would prove to be
very expensive because of this lack of outcome. Contrary to this
track record, cognitive behavior management is the most documented
and most effective type of intervention available. Thus even if
its cost were higher than anything else it would prove to be the
least expensive over time if the literature and research are correct.
Categorical Funding
Presently in the Commonwealth of Pennsylvania, there are four [04]
distinct resources for 'behavioral health' services. [This ignores
the separation of categories within groups, e.g., partial hospitals
or Family Based Rehabilitation Services.]
Community Funds: Those monies allocated by government to operate
the Office of Mental Health at the County Level and to run certain
community programs. These funds are allocated directly to the County
Administrator, who under regulation administers their allocation.
State Hospital Funds: Those monies allocated by the government
to operate and make available 'beds' for CC citizens who need them.
These funds are allocated directly to the State Hospital Superintendent,
who under regulation administers their allocation.
Medicaid Funds: These monies are separated into "fee for service"
and "managed care" funds. The first are administered directly
by the Office of Medical Assistance Programs [OMAP] and in the southeast
region are incidental.
The second is provided to the MCO by contract between the County/OMAP
and the MCO and covers all Medicaid services except as the incidental
'fee for services' applies. These funds are managed by the MCO under
contract to the county.
Local citizens in need of 'behavioral health' services may use
any or all of these resources. However, these resources are not
coordinated into one PLAN. Placement of a citizen in a State institution,
for example, holds the County Administration financially "harmless',
in that there is no cost to the local budget [either OMH or MCO].
This potentially creates a financial incentive to place costly end
users in the institution, rather than expend local resources. If,
the State Hospital Funds came directly to the County Administrator
and s/he could choose either to purchase the very expensive [$90,000+
annually] services of the institution OR provide intensive services
in the local community, the clinical issues would be better served.
Operating a county program without having all of the resources in
one budget, therefore is inefficient and ineffective. Any attempt
to organize a managed care process in the county should attempt
to do so with ALL RESOURCES included in the plan. As an aside, it
should be obvious that there is a substantial group of people including,
but not limited to psychiatrist, who would lose jobs if these institutions
were closed. Such is the power of special interests.
Business requirements
In order to manage care, there are several basic requirements:
- management information: it is impossible to manage care without
a clear understanding of who is receiving care, for how long,
with what cost and what impact? This category should include performance
outcome management services [POMS]
- research & development: a critical part of managing care
is to be able to a) measure the impact of the care to determine
effectiveness and to cease expending resources if there is not
substantive improvement and b) to identify, develop or create
new options to replace those that do not work effectively.
- decision protocol: there must be clear basis upon which decisions
are made as to what services should be offered, for how much time
and for what purposes. Present lack of protocol leaves the individual
to the mercy of the provider of services who may or may not have
any effective means of intervening.
- performance contracts: the preferred providers must perform
certain activities in certain ways and cannot be contracted with
merely because they always have been. Part of the responsibility,
of course, is effectiveness. However, flexibility, creativity,
commitment to excellence, etc. are critical characteristics of
a 'learning system' which is capable of adjusting to new ways
of doing business to meet the expected outcome criteria.
- account brokers the term is deliberately foreign in order to
ensure that the 'case management' concept is taken further, given
more authority and responsibility, than traditional thought allows.
The 'account broker' is critical to user friendly, effective services
across all public person serving domains.
Behavior Health Rehabilitation Services and Education
All children go to school. It matters not whether they are in prison,
residential or partial clinical treatment or living at home. School
is the great meeting place. Educators in correction facilities and
hospitals are usually part of the public school system and owe some
allegiance to its policies and procedures. Such educators therefore
are either an asset to the child's psychological fitness or a detriment.
As a matter of course, it would seem wise for the county to ensure
that they are an asset. NOTE: While the following is specific to
Chester County in Pennsylvania, similar extractions can be made
anywhere. The principles pertain.
Universe
Definition: Children is the term used to define the population
between the ages birth to twenty-one.
According to the latest data for the school year 2000-2001, 63,578
children attended Chester County Public Schools. An additional 12,000+/-
attended non-public school giving us approximately 76,000 as the
number of children attending schools covering kindergarten through
twelfth grade. In addition, 500+/- children between the ages of
three to six were enrolled in early intervention. Finally, a number
of children between the ages of sixteen to twenty one have either
dropped out of school or graduated. The difference between the seventh
grade class [5137] and the twelfth grade class [4043] is 1104 or
21.5%. The population in CC is growing however and not all of these
can be considered drop outs. If we compare the average class size
of elementary school [5043] and secondary school [4713] we have
a 6.5% increase in size. Using this as our guesstimate basis, 6.5%
of 1104 or 72 would be subtracted as growth leaving 1032 as drop
outs. Further, since the graduating class of 2000/1 is 4,032, we
could use a figure of 4,000 as the average graduating class for
the last three years [assuming the average graduate is eighteen
years of age] and get a total of 12,000+/- graduates who are still
in the universe.
Adding together, we have the following approximation:
| Public school |
63,500
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| Non- public school |
12,000
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| Drop outs |
01,000
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| Graduates |
12,000
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| Early intervention |
00,500
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| Others below 6 |
25,300
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| Total Children in Chester County |
114,300
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Thus approximately 115,000 persons between the ages of birth to
twenty-one in Chester County are eligible for Behavioral Health
Rehabilitation Services.
Population
While projections vary, most publications use a figure of 10% to
12% to project the portion of the total population who will need
behavioral health rehabilitation services. The State of Pennsylvania
in 1996 suggested that out of a total population of 192,000 children
needing such services, 83,000 or approximately 45% of these would
have severe problems. Using these data as the basis for our projections,
it can be expected that 11,430 to 13,716 Chester County children
will need BHRServices, and 5,145 to 6,172 will have severe problems.
As a comparison to these projections the County public education
system identified approximately 600 children as being eligible for
special education as Seriously Emotionally Disturbed in the past
school year. Since special education has another criteria [being
able to benefit from individualized instruction] this figure would
be lower than the actual number of children who might be identified
by the school as Seriously Emotional Disturbed. Thus it is possible
that a child with serious and persistent problems in living continues
to be served in the regular classroom. It is also clear that many
children with other problems in living such as specific learning
disabilities [4,585], mental retardation [553], PDD/autism [100],
etc. develop maladaptive thoughts about themselves, others and future
prospects which lead to atypical and problematic behaviors that
are not directly connected to the originally disability. But even
including the totals of these populations we would only come to
5,818 [We can add another 42 if we count three to six year olds.]
However, it is still difficult to justify the discrepancy between
a projection of 12,500 and 600 or 6000. We could use another comparison
of a similar and overlapping population - juvenile court dispositions.
Disposition is defined as a referral disposed by the probation department
and/or the court. Any one youth may be involved in a number of dispositions
within a calendar year. In 1996 Chester county had a total of 552
dispositions a rate of 1.29% of the juvenile population between
the ages of 10 and 17. Using our projections for 2000/1, the population
would approximate 50,500 and the dispositions 651. The population
of the detention center averaged an annual figure of 342 children
[with possible duplication] for the years 1997 to 1999. While neither
of these figures indicates the total delinquency population, even
considering it to be only 10% leaves us short and 5% gives us our
first possible projections [342 = 6840 - 651 = 13020] that would
equate to the mental health projections. And we must remember that
the baseline figures are likely to include the same child several
times.
The figure presently being provided mental health services is also
well below such projections. Counting children served in the following
categories at any one time, we have the following picture:
| In-patient hospitalization |
0010
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| Residential Treatment |
0100
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| Partial Hospital Programs |
0100
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| Home & Community Services |
0200
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| Outpatient services |
0500
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| |
0910
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These are purely conjecture based on professional guesstimate,
since no actual figure were obtained. However, we expect them to
be well within a 10% margin of error. This number is also significantly
below the projections.
Three factors can be considered regarding these discrepancies:
o Projections such as 10/12% are self serving for purposes of raising
funds and far exceed actual practice.
o Even if such projections were true, the occurrence of problems
in living would happen at differing times in one's life and therefore
a smaller number are active at any given moment. or,
o Children are significantly undeserved in Chester County.
We would suggest that all three of these factors are true and contribute
to the discrepancy that is observed. It should also be noted however,
that public education [which in this conjecture includes Approved
Private Schools as an arm of, and funded by, the public system]
serves children both in the BHRS system and those who should be
in the system by whatever criteria used. We suggest that nonpublic
schools do not entertain educational services for students with
atypical behavior and by and large these children are funneled back
into the public system. Additionally, any child who is in the BHRS
system is also served by public education at some level. Consider
for example, the fact that the Chester County Intermediate Unit,
along with providing teachers for each of the partial hospital programs
operates:
The Child and Career Development Center, a school for students
with physical, emotional and mental disabilities ages 3 -21 years.
The Center for Alternative Secondary Education, a school for middle
and high school students with behavioral problems who experience
difficulty in the regular education setting.
The Chester County High School, a school for students who have
left the public school system before obtaining their high school
diploma.
In addition, the Chester County Intermediate Unit provides academic,
prevocational and life skills instruction to adolescents incarcerated
at the SouthEast Secure Treatment Unit (SESTU) and the Chester County
Prison.
Nonetheless, we are required to find some basis upon which to determine
the expected population which might need to be served. It would
seem that a 1% to 1.5% projection is subject to some consideration,
based upon empirical experience. 1143 to 1715 children at any given
time might be considered slightly above the present allocation of
resources, but well below what is considered to be a national standard.
In addition, one could begin to explore the notion of where and
how services are provided, for some children might be able to receive
services in nonidentified and nonintrusive ways in valued settings
depending upon how we determine the fundamental assumption and theory
of change.
What is more important, perhaps, is to determine the number of
all children with problems in living as identified by clinical,
educational, protective and correctional enrollments, without any
duplication in numbers. This number of children who demonstrate
problems in living of withdrawal or aggression should then be considered
to be 75% to 85% of the target population which might need services.
This is posited on two grounds: 1) since cognitive behavioral interventions
are the only research documented effective services, and 2) since
all children with problems in living, regardless of type would benefit
from cognitive behavioral interventions, these services should be
the option of choice for a 'behavioral health' rehabilitation service.
In addition, we would draw attention to the use of schools as a
fundamental 'valued' setting, which is uniquely both an institutional
and natural support, to be a primary environment, along with the
home, in which to implement supportive services and to coordinate
all educational, clinical, and corrective interventions. Since all
children are served in educational settings, and we posit that all
children with atypical behavior are served by public schools, it
would seem that a close relationship between public schools and
BHRS services would prove to be useful.
Methodology
The first issue of concern is to develop a coherent basis upon
which to develop this relationship. Some way to decide what is education,
what is BHR and what is combined. We would suggest that to entertain
this effectively, the managed care organization, the Office of Mental
Health and local education authority should discuss some fundamental
assumptions about atypical behavior and adopt a theory of change
with is compatible with these assumptions. We offer a reasonably
coherent fundamental assumption which is that: people are the sum
total of their thoughts. People cannot act differently than they
think, unless of course they are acting. This is a fundamentally
different order than an assumption of pathology.
From this fundamental assumption we would suggest that the theory
of change is that people will only change their behavior when they
change the way in which they think. Therefore interventions which
change the ways in which people think are the one's which would
produce the most change. Since research indicates that cognitive
behavior interventions are the most validated to be effective, we
suggest that the research supports our basic assumption.
Once this basic theory of change agreement is established, two
secondary issues remain:
o how do we identify all of the children who could benefit form
BHRServices without overidentifying them?
o how do we sort these children based upon the level of care needed
between educational and clinical services?
Since education deals with learning and thinking, it has a responsibility
to deal with some of the thinking issues that occur in atypical
children. However, at some point in time such thinking leads to
behaviors that are far beyond the boundaries of what one would normally
consider to be educational. So while, based on our fundamental assumption,
education can and should provide interventions that are both preventative
and developmental, it does not seem that they should be required
to address remedial issues. Additionally, BHRS personnel should
have some level of concern and participation in the advancement
and implementation of prevention and developmental services in the
schools, both because effectiveness at these levels would reduce
the need for later remedial intervention, and also because this
is presumably the area of their expertise. While teachers have excellent
teaching skills, their understanding of cognitive behavior content
is no greater than any other lay person.
Step 1. IDENTIFICATION
Two methods of identification occur.
- The parent identifies atypical behavior in their child
- The school personnel identify atypical behavior in the child
If the parent identifies the difficulty to the school or the school
staff identify atypical thoughts or behaviors, there is generally
considered to be a requirement to:
- consider instructional support
- consider the development of a 504 plan
- consider the implementation of a multidisciplinary evaluation
Depending on the severity of the situation or how it came about
the school may try counseling, instructional support or other options
to address the needs. When it is identified that BEHAVIOR IS THE
PROBLEM, rather than behavior being the result of another disability,
perhaps school personnel should initiate a specific protocol, a
Functional Cognitive Behavior Analysis [FCBA] to identify:
- the thoughts of the child
- the thoughts of the care managers [parents, teachers, aides,
etc.]
The Initial Inquiry of the FCBA is a dialogue with the child and
the significant people in the child's life about who, what, when
and where problems in living occur. This can be done individually,
but it can also be done in a group, which has more opportunity for
feedback improvisation. Caretakers feed off each other and expand
the observations about the child situation and external and internal
contexts. Internal contexts are determined by the 'leakage' from
self talk - judgmental commentary made about events and experiences
- from which we can begin to infer the core belief system. Core
beliefs generally are thought to include thoughts about self, others
(including what the person thinks others think of you), future prospects
and the attributions of cause for success and/or failure. From the
leakage [what the child says about these contexts in times of stress]
the assessment specialist can begin to infer the child's 'theory
of meaning' [the way the child interprets events and experiences
through the attribution of meaning. Of even more importance, perhaps,
is that the assessment specialist can gain an understanding of the
'inner logic' not only of the child, but of each of the caretakers
as well.
This process can be implemented, with parent permission, in a Home,
School & Community Council meeting which includes representatives
of the Office of Mental Health and could involve a representative
from managed care organization. From the FCBA Initial Inquiry a
process of hypothesis and plan development should ensue which would
identify potential interventions with:
- child
- parents
- siblings
- peers
- teachers
- other natural supports
The reason for the secondary and tertiary clients is that we view
the child as a system within a system. While it is true that individual
work with the child can have effectiveness, it is important to consider
interventions with those who provide incentive for and maintain
the maladaptive thoughts and behaviors. This plan might include
interventions which would normally only be implemented by medical
necessity, and from that standpoint would constitute a recommendations
for clinical evaluation OR implementation would be assumed by the
public school. For example: a one on one support is recommended
in the classroom to mentor the child in regard to his/her thoughts
and resulting behavior. This is not for purposes of academic support,
but is focused on the child's attitudes and behaviors. This does
not preclude that a teacher, guidance counselor or school social
worker might not be able to provide these clinical supports and
do so at more reasonable costs and less intrusively than if a clinical
staff person from a provider agency were to do so.
Step 2. DISTRIBUTION
Depending upon the disposition of the clinical evaluation for medical
necessity, the services could be financially supported through regular
or special education, educational ACCESS [this is a Medicaid status
Educational Rehabilitation Agency - Provider 47] or through the
Office of MH/MCO, [Community/BHRS - generally Provider 50, although
provider 29 and 33 can also be implemented and community programs
such as social rehabilitation and family based rehabilitation services].
We may even want to consider the development of an intervening financial
category in which the local education authority puts up 50% of the
funds and the MCO puts up 50% of the funds to cover special cases.
Thus the range would go from full educational funding to full mental
health funding; but the services would be coordinated.
The sorting process would include at least the following variables:
- community management of care through Home, School & Community
Council
- the clinical evaluation and recommendations
- the child's Medicaid eligibility
- the degree of need [scope, intensity, etc.]
- who is best able to provide the service
- who should fund the services
If the child is prescribed these services and through the clinical
evaluation and becomes Medicaid eligible, it would be natural to
assume that the BHRS would provide the services. However, if the
clinical evaluator is using the federal defining line of the medical
necessity, s/he may define a child who has, or a child who is at
serious risk of developing an emotional or behavioral disturbance.
This presents two very different categories: 1) a child who needs
intervention to remedy an existing condition, and 2) a child who
needs intervention to prevent the development of a condition. While
it is unlikely that all evaluators will or can be precise about
which position they are taking, such a variance offers up some possibilities
. We could, for example, suggest that any child who has a condition
warranting intervention is a clinical issue and should be addressed
through BHRS funding. On the other hand, a child who is at serious
risk could potentially be served in a variety of ways.
- through direct education intervention [counseling, classroom
management, school culture approaches, etc]
- though special education [emotional support developmental programs]
- through special education ACCESS [emotional support plus special
programs from the ACCESS menu]
- through medicaid [BHRS]
The development of decision points which help to sort these options
would help to solidify the way the county seeks to serve its children.
However, such decision points cannot be accomplished without a clear
agreement on a fundamental assumption and a theory of change. To
attempt to do the decision points without agreement is likely to
prove futile. It also would be better if the interventions ranging
from culture restructuring to cognitive restructuring were coherent
in their approach. This would require that a consistent point of
view and oversite be developed.
Another consideration, of course, is the fact that educational
staff might be in the best position to provide clinical support
and clinical staff may need to support educational interventions
as well. The separation of whom would pay and who would provide
would be drawn across a decision point of practicality and utility,
not jurisdiction. From this perspective, educational funds could
be used to pay clinical staff to carry out educational functions
and Office of Medical Assistance/medicaid funds could be used to
pay educational, correctional or protective staff [or even natural
supports] to carry out clinical functions.
Step 3. MONITORING
Once a child is in services, whether it be through education or
clinical auspices, there needs to be an assurance that a) the services
are being rendered, b) the services are being rendered correctly,
and c) the service is having a positive impact on the life performance
of the child. Presently such monitoring is rather 'hit or miss',
with most providers of services [educational, clinical, protective
and correctional] monitoring their own performance. Further, this
monitoring is rarely focused on substantive outcome in life performance.
In fact, most interventions are not able to identify any changes
in life situation after implementation. Several factors are involved
in correcting this aspect. First, there must be something clear
to measure against. Nothing is more unfair than to have someone
measure your performance while using a yardstick that is not appropriate.
Yet the yardstick of children's services seem by and large to only
measure how well the intervention is able to stop the child from
doing whatever s/he is doing that caused the referral. This is generally
referred to as the 'dead man test'.
Even if there is substantive improvement in the quality of life,
we may not really be aware of how and why this effect occurred.
Many procedures may be false and yet produce an approximately correct
answer. Human services are at special risk of committing the fallacy
of affirming the consequent. Thus, we may see evidence of positive
change in a child's life and assume that this is the 'real' thing
because we were involved.
Several aspects should probably be addressed:
- monitoring should be separated from service delivery
- monitoring should be measuring provider performance against
an established and agreed upon performance standard [baseline
to benchmark]
- outcome expectation should be clear and measurable
- outcomes should be verified in vivo, meaning in home, school
and community
We have modeled such a process in our recommendation for the Home,
School & Community Council to serve as the managing entity.
Since it includes home, school and community members, there is a
broad perspective which can be used to establish the 'reality' of
change in life performance. With the addition of a Plan Manager
(account broker), a person who acts as the eyes and ears of the
Council, there can be an intensity of involvement - focusing on
the implementation, outcome and satisfaction of all parts of the
system. Since child serving public agencies and their contracted
providers have their own internal quality control processes, the
Council can maximize the leadership understanding of the problems
and the solutions. Positing the Council as the 'gatekeeper' into
the system and the manager of care while in the system provides
a meaningful way for communities to care for their own children.
Step 4. Secondary clients
"Approximately two thirds of all children referred to mental
health agencies are labeled conduct disordered or oppositional"
(Kazdin, 1985). Serious antisocial behavior in children and adolescents
constitutes a significant problem in children's mental health services
and may be one of the most serious public health challenges in American
society (Earls, 1989; Prinz & Miller, 1991).
Among the most well-documented precursors and covariates of conduct
disorders are parent and family characteristics and behaviors, particularly
in the area of child management and monitoring. In addition, researchers
have convincingly demonstrated that parent and family characteristics
such as marital distress, spousal abuse, lack of a supportive partner,
maternal depression, poor problem solving skills, and high life
stress [socioeconomic disadvantages and a lack of social support
for the mother outside the home (e.g., few positive social contacts
with family or friends)] are likely to lead to serious defects in
child and family management practices. Attempts to address the issues
of child management, therefore, cannot be expected to achieve success,
unless some of these issues are directly addressed. A Social Learning
Family Intervention is a comprehensive approach which combines training
with clinical intervention and enhancement of natural supports.
This approach is specifically important for the families of children
with Conduct Disorders.
Child Management Training: the parents are taught a step-by-step
approach where each newly learned skill forms the foundation for
the next skill to be learned. Nine child management practices form
the core content components of the program.
- they are taught how to pinpoint problem behaviors of concern
and to track them at home [e.g., compliance versus noncompliance];
- they are taught social and tangible reinforcement techniques
[e.g., praise, point systems, privileges, treats]. Over time,
the tangible reinforcers are replaced by the parents' social reinforcement;
- they are taught discipline procedures, focusing on discipline
as a noun instead of as a verb. Discipline is seen as a method
of teaching the child how to discipline him/herself and take responsibility.
When parents see their child behave inappropriately, they learn
to apply a mild consequence such as a five-minute time out combined
with a learning experience [either written (Individual Behavior
Learning Packet), or in discussion about what constitutes appropriate
behavior]. Response costs and work chores are advocated for older
children;
- they are taught to 'monitor' their children, even when the children
are away from home. This involves parents knowing where their
children are at all times, what they are doing, and who they are
with and when they will be home;
- they are taught how to set up a time and area for homework and
the best methods to help their children finish homework assignments.
They are taught how to contract with the school to receive daily
notes regarding assignments and completion;
- they are taught problem solving and negotiation strategies and
become increasingly responsible for designing their own programs;
- they are taught how to play with their children in a non-directive
way, and how to reward children's prosocial behaviors through
praise and attention. The objective is for parents to learn to
break the coercive cycle by increasing social rewards and attention
for positive behaviors and reducing their commands, question and
criticisms;
- they are taught how to communicate transactionally, adult to
adult; and
- they are taught ways to communicate direct, concise and effective
directions for mastery.
Training methods include role-playing, modeling and coaching. Homework
is assigned in the form of daily ten minute practice sessions with
the child using the strategies learned. Based on Bandura's modeling
theory, the program utilizes video tape modeling methods. Efforts
are made to promote the modeling effects for parents by creating
positive feelings about the models shown, using models of differing
sexes, ages, cultures, socioeconomic backgrounds and temperaments
so that parents will perceive the models as similar to themselves
and their children. Video tapes show parent models in natural situations
[unrehearsed] doing it right and doing it wrong in order to demystify
the notion that there is 'perfect parenting' and to illustrate how
one can learn from one's mistakes. After each session, the trainer
leads a family discussion of the relevant interactions and encourages
parent ideas.
The process takes a minimum of thirty hours with additional time
for follow-up and reinforcement.
Modifications for adolescents include targeting behaviors believed
to put the adolescent at risk for further delinquency [e.g., curfew
violations, drug use, time with 'bad company']; emphasizing the
importance of parental monitoring and supervision especially with
respect to school attendance; and using punishment procedures such
as work details and restriction of free time. Parents also are asked
to report legal offenses to juvenile authorities and then act as
advocates for their children in court.
These training can occur in a classroom environment, perhaps run
by teachers provided appropriate training and guidelines, or with
a clinical staff person in support roles within the home. Locating
movable classes in elementary schools helps to alleviate transportation
issues and to build a sense of community. Community leaders could
be involved in the process and the whole process could be opened
up to the 'public' to reduce the stigma for families with problems
in living. In fact, there is the potential to 'charge' families
to attend. Parents who are being encouraged to participate in this
way might be given 'scholarships' to attend.
For families with severe and persistent problems in living the
training may need to be more individualized and require more clinical
attention. Family Based Rehabilitation Services or Mobile Family
Specialists could provide these services in the home.
Specific Clinical Interventions: The literature is clear that families
with severe and persistent problems in living have characteristics
which need to be addressed and many of these are listed above. Where
necessary, individual or family clinical interventions will take
place with sufficient intensity to at least prepare the individual
and/or family to take the initiative to address the problems on
their own. Such interventions will be cognitive behavioral in nature,
and consistent with the principles of social learning, teaching
the individual specific skills which will enable them to take responsibility
for their own lives.
This is clearly a clinical responsibility and is not, under normal
circumstances a children's service. However, as a support to the
psychological fitness, it should be a mandated part of the child's
Plan of Change for those families in which the primary caretaker's
problems are directly connected to the child's problems in living.
This would include addressing parent and family characteristics
such as marital distress, spousal abuse, lack of a supportive partner,
maternal depression, poor problem solving skills, and high life
stress [socioeconomic disadvantages and a lack of social support
for the mother outside the home (e.g., few positive social contacts
with family or friends)], which are likely to lead to serious defects
in child and family management practices
BHRS may reduce costs for some of these services by providing a
clinical presence in the elementary schools at night, so that several
parents with severe and persistent problems in living can be seen
in succession without additional travel.
Step 5: Tertiary Clients
Adults, other than the parents who provide natural supports and
peers who relate or refuse children with problems in living are
another point of interest if we are to help children with problems
in living change.
Supporting Adults:
People who provide natural supports such as relatives, friends,
neighbors, crossing guards, teachers, etc., may need to be trained
in new child management strategies and understand how to coordinate
their advice with the Plan of Change. This objective can be met
through individual or group training in cognitive behavior management
strategies to which clinicians provide support. It may be worthwhile
to consider training other professionals who intervene as well,
since the JPO or CY&F case manager can provide key supports
to the thinking changes by merely learning language and concepts
and perhaps even through scripting by the clinical staff.
Peers
There are essentially two broad clusters of childhood disorders:
- Over-controlled or internalizers
This group contains children with social anxieties and withdrawal
- Under-controlled or externalizers
This group contains children who are identified as having a conduct
disordered, oppositional defiant disorder or attention-deficit hyperactivity
disorder. The under-controlled child lacks or has insufficient control
over behavior that is expected in a given setting.
Social competence is defined as capacity to expectation. The ability
to draw upon a varied repertoire of socially appropriate behaviors
pursuant to goal attainment may be considered an important feature
of social competence. Because the behavior of externalizers are
so critical to schools, our focus is drawn to children whose behaviors
are not socially competent and interfere with the ability of the
child to develop mutually satisfactory relationships with adults
and peers.
Kazdin [1987] has outlined several key facets differentiating conduct
disorder from other problems of childhood behaviors [Short &
Shapiro, 1993]. Of importance here is the impairment of functioning.
These children exhibit antisocial behavior in sufficient frequency
and intensity to affect significantly their education performance
and interpersonal interactions. In addition, such children may also
be deficient in problem solving skills, particularly in generation
multiple and/or prosocial alternative solutions which results in
rigidity of aggressive responses. These impairments generally remove
the child from natural peer interaction.
Two subtypes of conduct disorder include.
- undersocialized-aggressive or solitary aggressive is characterized
by difficulty in interpersonal areas and has been associated with
peer rejection and poor social skills.
- socialized-aggressive or group aggressive is identified with
delinquent behaviors carried out in a group context.
Cognitive factors also play an important and well-documented role
in antisocial behaviors and conduct disorders. Antisocial children
often exhibit a cognitive response bias in which they interpret
ambiguous interpersonal stimuli as being hostile. This cognitive
bias may result in and justify aggressive responses to the misperceived
hostile stimulus and therefore reduce social interaction. Social
relationships are always interactive. Socialization takes place
in the interactive arena which children who are either rejected
or reject their natural peer group are prone to miss out on normalized
socialization and acquire increasing problems in living as a result.
Probably the most pervading and important of all the affectional
systems in terms of long-range personal-social adjustment is the
peer group [Harlow - 1974]. Rejection by the normal peer group not
only deprives a child of such learning experiences, but often leaves
the child only negative [deviant] peer groups within which to grow
and learn social affiliation. Since children with antisocial behaviors
are most often removed from valued settings and placed in special
settings with other children with similar problems in living, this
process is formalized by the helping systems. Group work with the
natural peer group can help that group learn how to accept and socialize
the antisocial child while helping the child deal with the need
to belong and the change required. Work with the resultant group
can help all members learn appropriate social interactions and identify
their own underlying value systems.
Again, the implementation of group work with a tertiary client
may not be seen as a cost effective way of expending medicaid funds
nor require a clinical staff. Social group workers [MSW] are required
to provide such services. The best place for natural peer group
support is in a neighborhood or community center, settlement house,
boys club, etc. The development of clinical support for such work
and the use of educational, correctional or recreational staff to
accomplish these tasks is well within reason. Use of the school
or other community facility as a site for implementation also makes
it more like a 'club' and potentially saves cost.
A Circle of Friends entails the artificial development of a personal
support network. The research shows that chronic mental patients
tend to live in smaller networks, to have a greater proportion of
their energies involved in kin relations, to have intensely negative
or ambivalent kin relationships, to have few clusters and higher
density in their networks and to have few long-term relationships
except with kin [Cutler, 1983]. The development of such networks
is of course, interactive, in that people with severe and persistent
problems in living also provide little reciprocity to their network
participants.
The availability of an effective personal support network can provide
both personal support in times of distress and the opportunity for
learning how to effectively relate to others. For children, such
a network needs to make available on a regular basis not only supportive
adults, but supportive peers. A circle of friends offers an opportunity
for community people to offer natural supports in a formalized way.
The Circle can be one way of assuring that the prosocial acculturation
is carried in the community and is not just in school. A circle
of friends offers an opportunity for community people to offer natural
supports in a formalized way.
- Through sociometry - define the present personal support network
[PSN]. Make sure that you include all life domains in the quest.
- Convene a meeting of the PSN. Interview the child and the members
about potential target members. Include in this process an examination
of valued settings that the child would like to participate in
- and seek candidates within these settings.
- Develop a specific job description for a friend. Identify roles,
functions, time commitments, etc.
- Interview target candidates for the friend positions. Explain
fully what you are asking and seek commitment of at least sufficient
time to determine whether this may become a life role.
- Convene a meeting of the new PSN. Discuss activities and events
in which each member might participate with the child. Make a
schedule for both individual and collective meetings.
- Monitor progress.
A Circle of Friends can be developed for the child or the family
and can be implemented by any group interested in its development.
Initiation by the Home, School & Community Council is helpful
for exploring the full range of life domains for potential participants.
It is also helpful to have an institutional organization to provide
support to the group.
Summary
When I think about how our century may be remembered, I believe
it will be for the gap between rhetoric and reality -- for calling
children "our future" and "most precious resource,"
but caring for them more in slogans than in actions. Philip Coltoff
"Over the past twenty years, numerous reports have chronicled
the lack of appropriate services to meet the needs of children and
adolescents with serious emotional disturbances. These previous
studies report that children in need of mental health care often
do not receive it or receive care that is inappropriate or inadequate."[Koyanagi
& Gaines - 1993] Our continued failure to unify the various
public child serving agencies into a singular approach under the
auspices of local community management is unacceptable. The combined
resources of education and clinical emotional and behavioral health
services provides a beginning way to unify the systems, change the
locus of control, create effective and efficient services utilizing
and allocating resources in optimal ways, and providing prevention,
development and remedial services in a coherent way.
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